The NEW & IMPROVED cystinosis survey. Complete it today!

There is always room for improvement and cystinosis experts felt that additional CCIR survey questions could help address gaps in our knowledge about the disease. This knowledge will be instrumental in propelling cytsinosis research forward. It could also potentially minimize the drug development timeline for promising new therapies so that better treatments get to the market sooner.

Will you please take a moment today to page through the improved survey? Login to your account as usual and you will notice that answers you provided to existing or unmodified questions are still recorded in the system so you do not have to start from scratch. Just check that the answer options you marked are still accurate today and update your response only if necessary.   Also provide answers to the new or modified questions.

Thank you for taking the time to help us collect this important information. Contact the Curator ( This e-mail address is being protected from spambots. You need JavaScript enabled to view it should you have questions or require assistance.